This is my first post on my first blog. I am a 62 years old. I am a wife, mother, grandmother, daughter, retired nurse and shop keeper. I was diagnosed with fibromyalgia 15 years ago and a multitude of other ailments before and after. There you have the sum total of who I am.
When the doctor finally confirmed the diagnosis of fibromyalgia he told me there is no cure, we can only treat the symptoms. Then he told me the B-I-G lie; he said the good thing is it won’t get any worse!!!!. Have I got news for him - it gets worse every day. If you have it you know. There are days when you feel like there is no way no can face even one more minute of pain, forget another day or week or year. And forget pain medicines. They are a joke. I haven’t found a single one that really stops the pain, some help but none really stops the pain. You just have to grit your teeth and bear it until it lets up and then go on. Or at least that’s how I do it.
My husband fusses at me; he says ” you’ll start your self hurting doing that”. And I tell him I will start hurting just breathing.
Speaking of family. Mine are wonderful. They are literally the only thing keeping me alive. If it wasn’t for them I would have checked out long ago. But I love them too much to leave now so I’ll keep on bearing the pain. They are very loving and understanding. At least they think they understand, but they really can’t understand. No one can unless they have been there.
I happened onto a site about invisible disabilities the other day. I never heard it called that before but it sure fits. I have always marveled that I could feel so bad and look so healthy. Back when I was working for other people instead of myself, I would get to feeling so bad sometimes that I would have to go home and I would get the funniest looks because obviously there wasn’t anything wrong with me. It really didn’t look like I was sck.
You know how when a small child falls down and bumps her head, she really cry hard until mama or daddy picks her up and cuddles her and loves her and then its all better. Wouldn’t it be great if it worked like that for us?
When the doctor finally confirmed the diagnosis of fibromyalgia he told me there is no cure, we can only treat the symptoms. Then he told me the B-I-G lie; he said the good thing is it won’t get any worse!!!!. Have I got news for him - it gets worse every day. If you have it you know. There are days when you feel like there is no way no can face even one more minute of pain, forget another day or week or year. And forget pain medicines. They are a joke. I haven’t found a single one that really stops the pain, some help but none really stops the pain. You just have to grit your teeth and bear it until it lets up and then go on. Or at least that’s how I do it.
My husband fusses at me; he says ” you’ll start your self hurting doing that”. And I tell him I will start hurting just breathing.
Speaking of family. Mine are wonderful. They are literally the only thing keeping me alive. If it wasn’t for them I would have checked out long ago. But I love them too much to leave now so I’ll keep on bearing the pain. They are very loving and understanding. At least they think they understand, but they really can’t understand. No one can unless they have been there.
I happened onto a site about invisible disabilities the other day. I never heard it called that before but it sure fits. I have always marveled that I could feel so bad and look so healthy. Back when I was working for other people instead of myself, I would get to feeling so bad sometimes that I would have to go home and I would get the funniest looks because obviously there wasn’t anything wrong with me. It really didn’t look like I was sck.
You know how when a small child falls down and bumps her head, she really cry hard until mama or daddy picks her up and cuddles her and loves her and then its all better. Wouldn’t it be great if it worked like that for us?
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